Thursday, October 6, 2011
Things are settled down now, yes, but I have to say I'm nervous of what lies ahead. Things like her skin problems, that she never had (these raised bumps that are red and puffy and dry all over her hands, some on her feet, and patches on her knees and elbows) wake her up at night because of itching (she doesn't really each much during the day)...and no real known reason, other than a possible drug reaction. I hate that. I hate that while things appear normal my baby can't feel normal. I'm taking her tomorrow to her pediatrician just to get a second opinion on if he thinks it's a drug reaction too or possibly eczema. And then if it is eczema, I have to make sure whatever ointment or medicine she has to take is okay with her oncologist so it doesn't interfere with her chemo. Not sure many people know this, because I didn't, but multivitamins and immunizations are all a no-no until she's done with treatment. If things go as planned, she'll be done with treatment the beginning of 2014, which is the year she enters Kindergarten (that fall). So that's a good thing.
Anyways, I'm nervous about next week. Just a little....because it's new chemo. Or atleast, a heavier dose. I think she gets methotrexate in her spinal taps she's had...this will be done IV. Typically, or I should say, the average child does fine with this chemo. But we've all found out Alaina is not the average child when going through treatment. She keeps her doctor on his toes, and the staff, that's for sure. She came in last week for a transfusion and they gave her tylenol and benadryl before they did anything just to be safe (she's had a reaction to both blood and platelet transfusions). She's just a very sensitive little girl and it freaks the hell out of me. What if she reacts to an important chemo and can't take it anymore? What if all these sensitivities screw up her chances of having a normal life afterward? It's scary. I try not to think about it because then I just go down that tunnel....
So enough of the depressing talk. Look at those donations! It makes me proud we've raised so much to go into helping kids, and other people, fighting cancer with Alaina. And on happier notes, I'm taking Averie for her first fishing trip after school tomorrow while my mommy's helper watches the other kiddos. She's stoked! So am I. :)